I'm sure we all have those little things from our childhood that we wish we could keep the same forever. The way we remember our grandparents' laugh or the way the first day of school always felt.
Apart from wishing both my grandfathers were still around, the only thing I would really keep the same is not having to deal with my own medical care. It loomed in front of me for so long and now all of the sudden it's here (really it's been here for a while, but while I lived at home mom still more or less took care of it.) And, I truly hate it.
Seriously, I would pay my mother or almost anyone else for that matter, pretend to be me and call all the doctors' offices and make appointments and deal with the insurance companies.
This is the hardest part about my medical care right now. Technically, pulmonary atresia with tricuspid stenosis is a children's condition, which means I have to see a pediatric cardiologist. It is very hard to do this because when I call to get referals to see the ped cardiologist I have to do this every time,
"When is your birthday?"
"But, he's a pediatric cardiologist...and you're 24 years old."
"I realize that, but, if you look at my records...blah...blah...blah."
What is worse is when I go to the children's hospital where I have to see my cardiologist and I have to explain to the security guards...yes, security guards...why I'm there and what I will be doing. I end up feeling so persecuted.